Heat, Fatigue and Victorian Clothing

The UK has just experienced the hottest July in years and everyone’s really enjoying the summery weather.

Except those of us who aren’t.

Most people with neurological disorders find their symptoms are exacerbated by heat. In other words, we’re the grumpy ones who complain it’s too hot when everyone else is hunting for skimpy clothing and slapping on the factor 15. Or in my case, sweltering under heavy clothes to keep the rays off my vampiric skin that burns at the first touch of sunlight.

MSers commonly list fatigue as their worst symptom. It’s also the hardest
to explain. It isn’t “feeling a bit tired” or “tiring easily” – it’s more like something suddenly stealing all your energy without warning and leaving you unable to do anything. No, getting more sleep doesn’t prevent it, not does taking things easy for a few days. And it usually gets worse when we’re too warm. One of my MonSter’s favourite tricks is to lie in wait while I cook dinner and pounce so I’m too fatigued to lift the fork to my mouth. It’s debilitating, annoying and can be downright embarrassing.
So why do I agree to attend an event in Victorian-style clothing on a hot day? It could be that I don’t want to let the organiser down. Or it could be plain old-fashioned masochism. Or maybe it’s because I’m too bl##dy-minded to give in to the MonSter today.

Whatever the reason, looking forward to seeing some more lunatics in Steampunk attire at the Punknic. And I’ll try not to be too grumpy!

BTW. Chrystal Heart is at the reduced price of £2.99 for the weekend. (Amazon willing!)
Click Here

Advertisements

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s

%d bloggers like this: